HUBIN - Human Brain Informatics Banner
Human Brain Informatics - Your Portal to Schizophrenia

CURRENT TOPICS
FACTS DISCUSS LINKS ABOUT HUBIN
SEARCH/SITEMAP/HELP/PÅ SVENSKA
LENA U CARLSSON'S COLUMN NEWS FORUM VIP CORNER MEDICATIONS RESEARCH

To Be A Relative

How does it feel to be a relative of a person who suffers from schizophrenia? In the Swedish book "Vår son har schizofreni" ("Our son has schizophrenia") which was published in a new edit in 1999, the authors write about their meetings with relatives:

"We have met a group of people who were sad most of the time, sometimes shaken and resigned, and occasionally with such strong and naked pain that we ourselves were deeply touched for a long period."The parents "bear and mediate when you come closer a paralyzing and heavily agonizing feeling of powerlessness, and of being stuck in an impossible situation, with no way out."

"Vår son har schizofreni"was first published in 1987 with the Swedish title "Vår son är schizofren? Familjeröster" ("Our son is a schizophrenic? Family voices"). In this book, the authors Marie Ahnlund, Ingrid Rosén and Lennart Lundin interviewed 17 parents of children afflicted with schizophrenia. The book is based on a university essay in psychology.

The material of the book "Vår son har schizofreni" is hence more than 15 years old. Has the gloomy picture of those relatives with the toughest situation changed for the better? Unfortunately not, as suggested by recent statements from a couple of mothers who have children with schizophrenia.

The two mothers have chosen to be anonymous, so the names used in the texts are fictitious.

The First Story Of A Relative

Relatives feel they get too little help

 

Problems with side effects are not taken seriously

 

Many relatives are too tired to seek help

 

The Second Story Of A Relative

A shock to see your child in such a bad condition
 
Relatives often feel great sorrow

Source:
Interview with the two mothers.


Back to the index page for Lena's column about relatives

 

 

 

 

 

 

 

 

 

 

 

 


 General Public and Family
Information »»
Information to general public and family.

Media »»
Schizophrenia in the media.
 
 Professionals
Conferences »»
Information about conferences.
Literature »»
Literature information.
 
 Subscribe to Newsletters
HUBIN Newsletters will supply you with the latest news about schizophrenia. »»
 
 Support Research
Make a contribution. »»
 
 About HUBIN
A project to accelerate research and development to find new solutions for human brain disease. »»

© HUBIN updated September 26, 2002 .

Håkan Hall and Ulrika Kahl at Human Brain Informatics
Department of Clinical Neuroscience, Psychiatry Section
Karolinska Institutet, SE-171 76 Stockholm, SWEDEN.
Phone: +46-8-517 75651 Fax: +46-8-34 65 63 E-mail: info@hubin.org