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The official schizophrenia organization in Sweden

How does it feel to live close to a person who suffers from schizophrenia? The members of Schizofreniförbundet - a Swedish association of families of mentally ill people - are among those who are best aware of these things. Most of the members are relatives of individuals with psychotic illnesses. Half of the members of the board are relatives and half are mentally impaired people.

About 35 000 people in Sweden are diagnosed with schizophrenia. The first Swedish interest group for these individuals, IFS, was created in 1979 by patients and staff at Lillhagen’s hospital in Gothenburg. It was formed because the founders realized that patients with schizophrenia are a neglected group even in comparison with other mentally ill people. A national organization, RIKS-IFS, was formed in 1987. Today, there are about 80 local associations and a little more than 5000 members. Since 2001, the national organization is named Schizofreniförbundet, and today people with experiences of other psychotic and mental disturbances are welcome too.

Schizofreniförbundet works for the rights of mentally impaired people and wants to help them live an independent and meaningful life. One of the most important functions of this association is to try to reduce the prejudices against schizophrenia in society and spread knowledge about this illness. Another important function is to create respect for sick people and their relatives. The interest group also works to develop and improve the care and rehabilitation of the patients. Today, the possibilities to receive help and support vary considerably between different locations. Schizofreniförbundet and its local organizations are also important lobbying groups in the Swedish society. The organizations participate as experts, and as a body to which a proposed measure is referred for consideration, in certain national investigations.


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© HUBIN updated September 26, 2002 .

Håkan Hall and Ulrika Kahl at Human Brain Informatics
Department of Clinical Neuroscience, Psychiatry Section
Karolinska Institutet, SE-171 76 Stockholm, SWEDEN.
Phone: +46-8-517 75651 Fax: +46-8-34 65 63 E-mail: info@hubin.org